Hugo Campos (he/him) has built a 20-year career fueled by a unique blend of creative and technical skills. The roles that he has played along the way include creative director, art director, visual designer, marketer, computer programmer, and presentation coach. Hugo is an advocate for patient autonomy, accountability, and access to health data. He was named a White House Champion of Change for Precision Medicine by President Barack Obama in 2015 for his data liberation advocacy. What particularly drives Hugo is a passion for participatory medicine, connected health, and patient empowerment through the use of technology. He believes that health care can—and must—be transformed into a truly patient—centric system. His own story includes being a hypertrophic cardiomyopathy patient with an implanted cardiac device and being a caregiver to parents with heart failure. Hugo was invited to share his story, “Fighting for the Right to Open his Heart Data,” as a TEDx presenter at Harvard University in 2012. He is a passionate advocate for the rights of patients to access their health data and become empowered participants in their own health care.
In addition to serving as a Participant Ambassador, Hugo is the Chair of the California Precision Medicine Consortium, a member of a Community Advisory Board, and a Participant Lead for THRIVE: Trajectories of Recovery after Intravenous Propofol vs. inhaled VolatilE anesthesia, a Patient-Centered Outcomes Research Institute (PCORI)-funded multicenter, pragmatic, comparative effectiveness, randomized controlled trial. He lives in Oakland, California, with his husband of 26 years, his elderly father, and Memphis the cat.